Alex's Story
On the eve of our child Alex’s 6th birthday (April 2024), we heard the terrifying words no parent wants to hear… “Your child has a gene mutation; we confirm the diagnosis of Duchenne Muscular Dystrophy.” We started a race against time, as the disease progresses rapidly (causing body deformities, disability, affecting the respiratory system, digestive system, and heart), and we needed to quickly find adequate treatment. In Bulgaria, the disease is considered incurable, and only aggressive corticosteroid therapy is applied, which can trigger other illnesses. We found hope and an alternative at LIV Hospital in Turkey with the team of Prof. Dr. Erdal Karayoz. They apply stem cell therapy, ozone therapy, and physiotherapy costing 10,000 euros per infusion. These infusions are necessary to maintain Alex’s body and keep him on his feet, preventing disease progression. Currently, the treatment is done every 2–3 months, and at least 10 more infusions are needed. At the moment, there is a medication costing over 3 million USD, but the price is expected to decrease in the future, making it accessible so Alex and many other children can be cured. Until then, we need your support to give our child a normal, full life, a happy childhood, and a smile on his face. Anyone willing and able can support us financially and share Alex’s donation account.
Donation account at DSK Bank
Account holder: Alexander Angelov Simeonov
IBAN: BG19STSA93000031476151
BIC: STSABGSF
Social cause
Cause with a mission
Less waste, more kindness
At Aquamarine Hotel, we believe that goodness begins with small choices – both in the kitchen and in the heart. That’s why we launched our “Food for Life” initiative – a project for responsible management of food waste. Instead of throwing away excess food, we optimize our processes to reduce waste and free up resources for truly meaningful causes.
We help Alex
With the funds collected from saved food waste, we support Alex – a brave child fighting a rare and severe syndrome. Every lev we save from discarded food will be donated for his treatment. For us, this is not just a gesture, but a moral duty.
A Gift with a Cause
In partnership with talented mothers who care for their sick children, we offer handmade gifts full of story and heart. Each item is created with love and hope for a better future. By purchasing these “gifts with a cause,” you directly support families in need.
Change starts with you.
Thank you for being part of our community! By choosing to stay with us and/or purchase a gift with a cause, you are already making a difference. Less waste. More care. Real help.
Alex's Story
On the eve of our child Alex’s 6th birthday (April 2024), we heard the terrifying words no parent wants to hear… “Your child has a gene mutation; we confirm the diagnosis of Duchenne Muscular Dystrophy.” We started a race against time, as the disease progresses rapidly (causing body deformities, disability, affecting the respiratory system, digestive system, and heart), and we needed to quickly find adequate treatment. In Bulgaria, the disease is considered incurable, and only aggressive corticosteroid therapy is applied, which can trigger other illnesses. We found hope and an alternative at LIV Hospital in Turkey with the team of Prof. Dr. Erdal Karayoz. They apply stem cell therapy, ozone therapy, and physiotherapy costing 10,000 euros per infusion. These infusions are necessary to maintain Alex’s body and keep him on his feet, preventing disease progression. Currently, the treatment is done every 2–3 months, and at least 10 more infusions are needed. At the moment, there is a medication costing over 3 million USD, but the price is expected to decrease in the future, making it accessible so Alex and many other children can be cured. Until then, we need your support to give our child a normal, full life, a happy childhood, and a smile on his face. Anyone willing and able can support us financially and share Alex’s donation account.
Donation account at DSK Bank
Account holder: Alexander Angelov Simeonov
IBAN: BG19STSA93000031476151
BIC: STSABGSF
Deniz's Story
Our story began three and a half years ago. I had a wonderful pregnancy, and everything seemed normal. On 09.11.2021, our little sunshine was born. He was born with low weight and height, and a heart murmur was detected. The neonatologists performed all the necessary tests and said he was healthy and could go home. And then everything began…
Very painful and prolonged colic, constant crying, we couldn’t soothe him for hours, sleep problems, refusal to eat, delayed motor development, and many other issues. After three and a half months, Deniz was diagnosed with a rare genetic syndrome called Williams-Beuren syndrome (Elf syndrome) – a deletion of about 26 genes on chromosome 7, as well as heart malformations – pulmonary stenosis and supravalvular aortic stenosis.
We immediately started early intervention for his development. A year and a half later, the colic disappeared, and he became a very happy child – he began exploring the world around him with great curiosity, became very social, and every little achievement was the most amazing thing for us!
This is Deniz – a child who loves music, laughter, and life.